Wednesday, April 30, 2008

Hey!!! Heeeeey!!!

Last week, Miguel started sleeping Thursday. So, he was "ill" Sunday through Thursday. Friday he attacked staff when having to get on the bus. Apparently, he was biting and headbutting staff all the way to the bus.....Welcome to my world.

Changing subjects a bit....Fox News is having segments on Life with Autism. I can't identify with any of it but I will keep watching anyway.

Alright, back to Miguel and progress with the system..... Yesterday I toured Brenham State School and I have decided that this is where Miguel will reside. Today I filed a motion with the court to involuntarily admit Miguel to Brenham State School on the basis of "harm to self and others". His court date is set for 5/16.

Aside from that, the systems that I have dealt with since beginning this process have been insensitive, rude and uninformed/incompetent.

I wish this crap on no one.

"I always wanted to be somebody, but now I realize I should have been more specific."
-- Lily Tomlin

Tuesday, April 22, 2008

So it wasn't allergies =(

Miguel is "sick" again. The spinning, bathing throughout the night, refusing to sit/lay down, waking up at 0330, the funny breathing pattern, the screaming and fussing...

It started Sunday night, let's see how long this one lasts.

A man's got to believe in something. I believe I'll have another drink.
--W. C. Fields

Sunday, April 20, 2008

My other handsome baby

Saul Sausage Sullivan

Friday night...

Miguel said...

"Abbey, Andy, Sully, get in the house."

Meet Abbey, Andy and Sully...

Miguel hasn't said that since Friday but it was cute and unexpected. Sweet boy.

Tuesday, April 15, 2008

Wali-tin to the rescue!

WTF is WALI-TIN?!?!?! Walgreens generic Claritin!! Yeah, so Migs mystery illness that has been plaguing the household is, no other than, ALLERGIES! Who woulda thunk it? My allergies have come back, too, after many years without. So, Miguel is back up to speed...raiding the fridge (lunch meat and spaghetti today), spontaneously screaming his ass off (just for fun) and putting weight back on. He is up 2 pounds and feisty for a beefcake. :)

We have been sleeping through the night and had a dry bed last night. I think I heard Miguel wheeze was kind cute and sad at the same time. Little booger. :)

Today was an exhausting day. I went to look at homes this morning, had an ARD at 1000 and Migs had a neurology appt. at 1400. It all went fairly well but it is amazing how it manages to suck the life out of you! I'm pooped and I hope to be in bed by 2100....uuuuhhhhh....sleeeeeeeeep.


"Everyone should have kids. They are the greatest joy in the world. But they are also terrorists. You'll realize this as soon as they are born, and they start using sleep deprivation to break you."

-- Ray Romano

Wednesday, April 9, 2008

"Sick", again.

Last week was soooooo AWESOME!!!! Miguel slept normally, he was in a fantastic mood ALL WEEK and he was so chatty. He was singing songs spontaneously (Ring around the Rosie, Baby Beluga (an all-time fave of mine)) and on Sunday he started to say a phrase I never heard before. I couldn't make out what he was saying but it sounded familiar. It took me a while to realize that he was repeating the sound of one of his toys. It's a big, red car with a mommy, daddy, apple, and something else button on it. When you press the mommy button it says, "This is Mommy. Look both ways before crossing the street." That is what Miguel kept saying all day long. The funny thing is, I've never heard him say that and he hasn't played with that toy in 2+ years!!! That is just amazing!!! I can't even remember 2 days ago, let alone 2 years ago. It's just wild.

Anyways, on to the bad news......

Miguel went to bed this morning at 0510. How do I know? Because that is when I picked up my blanket and pillow off the floor in front of the bedroom door and crawled into my bed. The past 3 times he was sick, I did this because he stays up spinning with intermittent screaming and sometimes leaves the room to visit Uncle Jason or the refrigerator. So I camp out in front of the door so I can get more sleep.

Miguel started the spinning, labored breathing and "hand pump" Monday night. I saw it briefly. I thought "oh shit". Then last night it came over us and I can't wait until it is over. I am starting to wonder if it is intestinal. He doesn't like to sit on the potty for more than 1/2 a second, he stops BM-ing and he wets himself A LOT. I am going to call his pediatrician tomorrow. Maybe I'll get more than a shoulder shrug.

GOOD NEWS!!!! I met with a local agency and started paperwork for In-Home Services. Once everything is processed, I will find out how many hours a month we will receive. Also, they are looking into State Schools w/o signing over parental rights. I have that application to complete, too.

Next Tuesday I have an ARD. Can't wait. Miguel has a neurology appt. on Tuesday, too. Maybe he can shed some light on Miguel's woes...... Let's hope!!!